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Rare Disease Day 2019

Unusual. Uncommon. Infrequent. What else comes to mind when you hear the word, “rare?” It’s used so often that we can easily forget the significance of something that is scarce or atypical. Today, February 28, 2019, is Rare Disease Day. Read more

Rare Disease Day 2018

By attending advocacy events, we learned that people affected by rare diseases are passionate about making a difference in their communities. In reality, they are not often given the opportunity to communicate their experiences with the companies that create the medical devices and medications they use on a daily basis.  Read more